A hanseníase e o cuidado às pessoas e coletividades: cartografando políticas, iniciativas e itinerários de aprendizagem em Campo Grande-MS

Abstract

Seen as a serious public health problem in different locations, leprosy is a disease marked by taboos and carried by stigma. Beliefs about its origin and the lack of knowledge about the forms of treatment have, throughout history, caused the control measures to isolate individuals, being responsible for family breakdown and social stigmatization. Although there is treatment for the biological disease, the social effect remains active, which is why the need for measures aimed at reducing stigma, social reintegration and quality of life for individuals. The practice of social participation in councils and conferences strengthens social control, system management and, consequently, the guarantee of social rights. We speak of a participation that has the capacity to impact the aesthetic plan of care, with more inclusive forms of care, and a broader understanding of the path can contribute to the organization of unique actions and production of new levels of culture. The study sought to understand the logics present in public policies and the impact of care processes on users of the Unified Health System (SUS), with emphasis on the city of Campo Grande-MS. This study used publicly accessible documents and was developed in two stages. The first, a case study, on the formulation of policies for the control of leprosy and the care of people and communities affected by the disease or risk of contracting it and its consequences, in the wake of the ascending process of the 16th National Conference on Health and of publicly accessible data and indicators that make up the strategy for monitoring and evaluating initiatives in the SUS. The second is the cartographic record of the effects of the research on the author. The results showed that, considering the deliberations of the three stages that constituted the process of the 16th National Health Conference, there was an omission of specific references in relation to leprosy in the municipal and state reports and the very generic reference in the report of the national stage. The findings on the instruments for planning and monitoring actions in the municipal and state health systems in the period from 2016 to 2019 do not show enough visibility to the theme in the way of organizing services. The indication of the reports is that the SUS is not only responsible for assisting diseases, but also to operate as an observatory of civilizing processes and as a laboratory for inclusion and equity. The research carried out does not exhaust the theme of leprosy in public and health policies, demanding new studies, especially using the daily routine of care and management services, including those that demonstrate breaking with invisibility and stigma. It is necessary to understand more deeply what makes some work processes more sensitive to people and the characteristics of the territory, how it mobilizes the Family Health Strategy and the guidelines of the national health policy. Keywords: Leprosy. Stigma. Social Participation. Conferences.