A Percepção da família diante a realização da assistência em crianças com Transtorno do Espectro Autista

Abstract

Introduction: Autism Spectrum Disorder is a developmental disorder characterized by alterations present from a very early age, typically before the age of three, which have a significant impact on areas such as communication, social interaction, learning and adaptability. Providing care can still be an obstacle for health professionals and families in the hospital and outpatient sectors. Thus, the relationship between children, families and health often becomes a source of conflict, due to the way in which care is provided to this population. Aim: The aim of this study was to describe the family's perception of the care provided to children with this disorder, looking at the characteristics of the families and the teams in the sectors. Method: A descriptive qualitative study was carried out, based on primary data collection, through a semi-structured interview, carried out at the Maria Aparecida Pedrossian University Hospital, in the municipality of Campo Grande, Mato Grosso do Sul, in the pediatric ward and outpatient department. Twelve families were interviewed; the sample was by convenience and data saturation was used. Results: Throughout the research, it was observed that the families' demands are met by the service, however, there are still weaknesses in the service, especially in relation to the training of professionals and the implementation of practices aimed at this population. Conclusion: Further research on this subject is therefore needed in order to propose more effective interventions and public policies that increase support for children with ASD and their families.