REDE FORMAL, REDE INVISÍVEL E REDE EXISTENCIAL - ENCONTROS CARTOGRÁFICOS NAS MÚLTIPLAS REDES DE CUIDADO ÀS PESSOAS COM DEFICIÊNCIA EM UMA CAPITAL BRASILEIRA

Abstract

The Health Care Network proposes itself as a model of organization for health actions and services in an integral way, aiming to improve access, comprehensiveness of care, effectiveness of actions and economic efficiency. It is necessary to analyze the set of practices offered by our health institutions, discussing and problematizing the current policy based on the visibility and sayings of the daily lives of users, professionals, services and management. The implementation of a policy is not based only on its text, its intentions and publication, but is crossed by disputes and tensions of different natures. Thus, this study was concerned with mapping a Care Network for People with Disabilities in a Brazilian capital from the maps and flows of the services of the Care Network for People with Disabilities and from the analysis of the RCPD maps and flows followed by users/guide/citizens to access the network's services in search of health care, in order to contribute to the debate on how the production of care as PCD has materialized and problematize the policy itself. Having the meeting with users-citizens, professionals and managers as a method, we bring analyzers that emerged from the experiences and existential connections of the research participants. The maps, flows and analyzers that were produced and discussed gave visibility to multiple care networks: formal, invisible and existential. The formal network consists of several public and philanthropic rehabilitation institutions in specialized care. In addition, the paths of research evidenced the invisible network, which are spaces that constitute other forms of network construction and do not officially make up the RCPD of the municipality, but which are permanently materialized in the construction of existential networks that transit in the space of health and life of citizen users. It is noticed that the policy proposes the creation of a health care network, but that, paradoxically, it reinforces a fragmented care that places the centrality of PCD care in rehabilitation services in EA, either when we think of the formal network as well as the invisible network, and both are crossed by the existential networks of citizen-users. All issues highlighted and problematized in this research are important clues that the current policy does not account for the realities that present themselves in the daily care of PCD, both in relation to the modes of implementation and in relation to the power of the policy as a care device integral that considers the PWD in their differences.